Showing posts with label Muscular Dystrophy. Show all posts
Showing posts with label Muscular Dystrophy. Show all posts

Friday, January 27, 2012

All Hands on Deck


This semester we have started to learn manual muscle testing (MMT) and how to take range of motion (ROM) with a tape measure and a goniometer. It is really exciting to start to get hands on. So far we have only done the neck for range of motion, but we have done the trunk and neck for MMT. It is amazing how important practice is. I was practicing with friends after class today, and it was amazing how many different times we had to rearrange our bodies to be able to take the measurements. An experienced practitioner would know exactly how to position themselves, and the right order to do all the testing, so that the impact on the client was minimal. Book learning is only going to get you so far on these skills.

Today in mental health we formed four different groups for different projects. Group work is a big part of occupational therapy school. Group selection is a little different in the second semester. People have friends that they like to work with, other people want to work with people they do not hang out with, and sometimes people who like to get work done early seek the others who like to get work done early. Let's hope all these projects run smoothly.

The other big happening this week is we got to meet the family that is building the house that we are help designing. I am assigned to work on the bedroom for a 15 year old boy with Duchene Muscular Dystrophy (DMD). I was a little disappointed because he spends most of his time in the common areas currently, but I know we are going to make his room so awesome that he is going to spend all his time there. I have a to-do list that is a mile long, so I should get a start on that. 

Sunday, January 15, 2012

Darius Goes West


We watched this documentary in one of my classes. I thought it was amazing. You should definitely check it out. It is the story of a boy with muscular dystrophy that wants to get his wheelchair pimped by MTV's show "Pimp My Ride". With the help of some friends a three week cross country trip in a RV from Athens, GA to Los Angeles, CA and back was planned to try to convince MTV to trick out the wheelchair. They also filmed a documentary to bring awareness to muscular dystrophy and wheelchair accessibility. It is an eye-opening and heart touching film.

The story that struck me most from the film was Darius, the boy with muscular dystrophy, was dared by some of the crew (comprised of his friends) to eat a spoonful of wasabi. Darius was not one to back down from a bet. However, someone else in the restaurant yelled at the crew for picking on Darius. Darius in no way felt picked on and felt like he was just hanging out with his friends. It was just a strong reminder that people in wheelchairs do not want to be coddled or pitied, but be part of the gang.

The film brings up wonderful perspectives on wheelchair accessibility, living with muscular dystrophy, and living your life the fullest. If you want to check it out you can go to http://www.dariusgoeswest.org/the-film/ to purchase the film and learn more.   

Here is a preview: